What Do Brothers and Sisters Think? An Investigation of Expectations of Siblings with Autism Spectrum Disorders

JAASEP SPRING/SUMMER 2009 Part 2 of 9
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Once rare disorders, the diagnosis of an autism spectrum disorder (ASD) is more prevalent today than ever before. In the year 2000, the American Psychiatric Association estimated that the prevalence rate of ASDs was approximately 1 person in 2,000 (APA, 2000). Current statistics from the Center for Disease Control’s Autism and Developmental Disabilities Monitoring Network estimates that ASDs are found in 1 in 150 children across the United States (CDC, 2007). ASDs transcend all ethnic and socioeconomic groups, though affecting more boys than girls. Due to these increasing numbers of families confronting issues associated with raising a child with an ASD, there is an increasing number of typically-developing siblings who are affected by ASDs. Autism is a pervasive developmental disorder that has a major impact on the family unit (Kaminsky & Dewey, 2002). Research indicates that having a child with a disability in the family leads to difficult role changes and adjustments for the family, specifically for siblings (Cuskelly, Chant, Hayes, 1998). Research has heightened the concern for the adjustment and coping abilities of sibling of children with autism (Hastings, 2003).

Abstract

This study, with its foundation in expectancy theory, investigated the expectations of siblings of children with autism spectrum disorders (ASD). Forty siblings, 7-22 years of age, in Texas completed a 19-item survey that examined the expectations of siblings of persons with ASD according to the sex and age characteristics of these sibling dyads. The results indicate that there is an association between the expectations of siblings of persons with ASD and the respective sex and age characteristics of these sibling dyads. Siblings of same-sex dyads appeared to have significantly higher expectations for their sibling with autism while siblings of different-sex dyads appeared to have significantly lower expectations for their sibling with autism. Results also indicate a significant association between sibling dyad age differences and expectations.

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