Self Determination

(The ability to control one’s destiny)

What it means and how to help your student develop self

One of the most significant concepts to emerge in the last few decades is the awareness of the importance of self-determination in the life of an individual with a disability. For too long, professionals made decisions for people with disabilities with little input from the individual or parents. While these decisions were motivated by good intentions, they may have overlooked the desires, hopes, and aspirations that remained hidden within the person with disabilities. As our society has become more sensitive to the needs and rights of the disabled, we have moved to the concept of self-determination as a crucial element in the design of a life plan.

Self-determination is a person’s ability to control his or her own destiny. A crucial part of the concept of self-determination involves the combination of attitudes and abilities that will lead children or individuals to set goals for themselves, and to take the initiative to reach these goals. To do this one must be in charge, which is not necessarily the same thing as self-sufficiency or independence, make his or her own choices, learn to solve problems effectively, take control and responsibility for his or her life, learn to experience and cope with the consequences of making decisions on his or her own.

Martin and Marshall (1995, cited in Wehmeyer et al., 1998) summarize the evolving definition of self determination in the special education literature as describing individuals who:

Know how to choose-they know what they want and how to get it. From an awareness of personal needs self determined individuals choose goals, and then doggedly pursue them. This involves asserting an individual’s presence, making his or her needs know, evaluation progress toward meeting goals, adjusting performance and creating unique approached to solve problems (p. 147).

The Development of Self-Determination Skills

The development of self-determination skills is a process that begins in childhood and continues throughout one’s life. It must be fully understood by parents when a child is still in school. This process begins early, so that the child learns how to grow up as a self-advocate and not be afraid to voice his or her needs, concerns, and opinions.

Parents of children with adequate mental competence sometimes “protect” them by making all their decisions. Parents interested in developing self-determination skills for their children must help them learn to:

  • set goals
  • evaluate options
  • make choices
  • work to achieve goals
  • practice self-determination experiences by offering opportunities for decision making, socialization, leisure activities
  • explore employment and housing options
  • explore community recreation programs in their community by utilizing their own network of relatives and friends, as well as formal service systems
  • take an active role in the decisions that will determine their future–even if it means allowing them to make mistakes.

Helpful Links on the Topic

George Washington University HEATH Center : Self-determined students, with the help and encouragement of family and professionals, are best positioned to make informed, appropriate choices about their futures. The following fact sheet emphasizes the important role of self-determination in effective transition planning for students with disabilities, their families, professionals, and service organizations.

Kids as Self Advocates : KASA is a national, grassroots network of youth with special needs and our friends, speaking on behalf of ourselves. We are leaders in our communities, and we help spread helpful, positive information among our peers to increase knowledge around various issues. Those issues include: living with special health care needs, health care transition issues, education, employment, and many more.

PACER Center   : Self determination is believing you can control your own destiny. Self-determination is a combination of attitudes and abilities that lead people to set goals for themselves, and to take the initiative to reach these goals. It is about being in charge, but is not necessarily the same thing as self-sufficiency or independence. It means making your own choices, learning to effectively solve problems, and taking control and responsibility for one’s life. Practicing self-determination also means one experiences the consequences of making choices. Read more…

Self Determination Lesson Plans : The following references are for data-based research studies in which students or adults were taught a new self-determination skill or set of skills. Lesson plan starters have been developed based on the description of the intervention and data collection procedures provided in each study. 

Express Yorself: Assessing Self Determination in your Life- Pdf file: This self-assessment is designed to help you discover how much self-determination you have in your life. You are the person in charge of this assessment. To complete it, you’ll read a series of statements and think about whether they describe your life. This will help you identify life areas (such as money or relationships) where you’d like to increase your level of selfdetermination and other areas where you’re already satisfied. The simple act of thinking about these things will increase your awareness of the presence of self-determination in your life.

C.R.U.I.S.E. Consulting (Creating Readiness Using Interactive Supportive Experiences!)

C.R.U.I.S.E. Consulting specializes in resources and services designed to help individuals with disabilities make a successful transition to college. You can order resources for students or facilitators here.

Enable: The Person-Centered Planning Learning Site
Person-centered planning involves the development of a “toolbox” of methods and resources that enable people with disability labels to ` choose their own paths to success; the planners simply help them to figure out where they want to go and how best to get there. Part of the Program on Employment and Disability (PED) at Cornell.

Enhancing self-determination through group action planning. A holistic emphasis.

This article argues that the concept of self-determination is not just the skills that students need to be taught, but it also includes motivation and a responsive context. It goes on to describe how individuals that care about students with disabilities can use a group process model to facilitate a responsive context for self-determination.

From Research to Practice: Lesson Plans for Promoting Self-Determination
http://www.uncc.edu/sdsp/resource_list/sd_lesson_plans.asp
This resource includes a collection of self-determination lesson plans from research on self-determination. There are a number of topics, including self-advocacy, self-scheduling, problem solving, self-awareness, teaching students to participate in their IEP, and person-centered planning.

Taking Charge: Stories of Success and Self-Determination (Video-17 minutes)
This videotape synthesizes the advice of successful young people and adults with disabilities about how to succeed.

National Program on Self-determination
This site includes publications, a discussion forum, and a newsletter surrounding the issue of self-determination for individuals with disabilities. This program is connected to the Institute on Disability in New Hampshire.

NEXT S.T.E.P. Curriculum
At this site, you will find a description and history of the NEXT S.T.E.P. program and links to related projects. This site is part of the Secondary Special Education and Transition Programs at the University of Oregon.

Parenting Post-Secondary Students with Disabilities: Becoming the Mentor, Advocate, and Guide Your Young Adult Needs
This parent brief, developed collaboratively by PACER Center and NCSET, discusses the important issues that parents face when their adult child with a disability is moving on to postsecondary education.

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