Organizations
Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place N.W.
Washington, DC 20007
(202) 337-5220 (Voice); (202) 337-5221 (TTY)
E-mail: info@agbell.org
Web: www.agbell.org
Materials available in Spanish; Spanish speaker on staff
Alliance for Technology Access
2175 East Francisco Boulevard, Suite L
San Rafael, CA 94901
(800) 455-7970; (415) 455-4575 (Voice)
(415) 455-0491 (TTY)
E-mail: atainfo@ataccess.org
Web: www.ataccess.org
American Association of Kidney Patients (AAKP)
3505 Frontage Road, Suite 315
Tampa, FL 33607
(800) 749-2257; (415) 455-4575
(415) 455-0491 (TTY)
E-mail: info@aakp.org
Web: www.aakp.org
Materials available in Spanish; Spanish speaker on staff
American Association of Suicidology
(to find a support group)
4201 Connecticut Avenue N.W., Suite 408
Washington, DC 20008
(202) 237-2280
E-mail: info@suicidology.org
Web: www.suicidology.org
American Brain Tumor Association
2720 River Road
Des Moines IA 60018
(847) 827-9910; (800) 886-2282 (Patient Services)
E-mail: info@abta.org
Web: www.abta.org/
One publication in Spanish
American Council of the Blind
1155 15th Street N.W., Suite1004
Washington, DC 20005
(800) 424-8666; (202) 467-5081
E-mail: info@acb.org
Web: www.acb.org
American Diabetes Association
1701 N. Beauregard Street
Alexandria, VA 22311
(800) 342-2383; (703) 549-1500
E-mail: AskADA@diabetes.org
Web: www.diabetes.org
Materials available in Spanish; Spanish speaker on staff
American Foundation for the Blind (AFB)
11 Penn Plaza, Suite 300
New York, NY 10001
(800) 232-5463; (212) 502-7662 (TTY)
E-mail: afbinfo@afb.net
Web: www.afb.org
Materials available in Spanish; Spanish speaker on staff
American Heart Association-National Center
7272 Greenville Avenue
Dallas, TX 75231
(800) 242-8721; (214) 373-6300
E-mail: inquire@amhrt.org
Web: www.americanheart.org
Materials available in Spanish
American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
(800) 465-4872; (888) 443-7872
(212) 668-1000
E-mail: info@liverfoundation.org
Web: www.liverfoundation.org
Materials available in Spanish
American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
(800) 586-4872; (212) 315-8700
E-mail via Web site.
Web: www.lungusa.org/
Materials available in Spanish; Spanish speaker on staff
American Occupational Therapy Association (AOTA)
4720 Montgomery Lane
P.O. Box 31220
Bethesda, MD 20824-1220
(301) 652-2682 (Voice); (800) 377-8555 (TTY)
Web: www.aota.org
American Physical Therapy Association (APTA)
1111 North Fairfax Street
Alexandria, VA 22314
(800) 999-2782; (703) 684-2782 (Voice)
(703) 683-6748 (TTY)
E-mail: practice@apta.org
Web: www.apta.org
Materials available in Spanish; Spanish speaker on staff
American Society for Deaf Children
P.O. Box 3355
Gettysburg, PA 17325
(800) 942-2732; (717) 334-7922 (V/TTY)
E-mail: ASDC1@aol.com
Web: www.deafchildren.org
American Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD 20852
(800) 498-2071 (V/TTY); (301) 571-0457 (TTY)
E-mail: actioncenter@asha.org
Web: www.asha.org
Materials available in Spanish; Spanish speaker on staff
American Syringomyelia Alliance Project
P.O. Box 1586
Longview, TX 75606-1586
(800) 272-7282; (903) 236-7079
E-mail: info@asap.org
Web: www.asap.org
American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, VA 22314
(703) 683-9420
E-mail: atra@atra-tr.org
Web: www.atra-tr.org
Angelman Syndrome Foundation
414 Plaza Drive, Suite 209
Westmont, IL 60559
(800) 432-6435; (630) 734-9267
E-mail: info@angelman.org
Web: www.angelman.org
Materials available in Spanish
Anxiety Disorders Association of America
8730 Georgia Avenue, Suite 600
Silver Spring, MD 20910
(240) 485-1001
E-mail: AnxDis@adaa.org
Web: www.adaa.org
Aplastic Anemia & MDS International Foundation, Inc.
P. O. Box 613
Annapolis, MD 21404-0613
(800) 747-2820; (410) 867-0242
E-mail: help@aamds.org
Web: www.aamds.org
Materials available in Spanish; Spanish speaker on staff
The Arc (formerly the Association for Retarded Citizens of the U.S.)
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910
(301) 565-3842
E-mail: Info@thearc.org
Web: www.thearc.org
ARCH National Respite Network & Resource Center
Chapel Hill Training-Outreach Project
800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
(800) 773-5433 (National Respite Locator Service)
Web: www.archrespite.org
Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357
(800) 283-7800
E-mail: help@arthritis.org
Web: www.arthritis.org
Materials available in Spanish; Spanish speaker on staff
Asthma and Allergy Foundation of America
1233 20th Street, N.W., Suite 402
Washington, DC 20036
(800) 727-8462; (202) 466-7643
E-mail: info@aafa.org
Web: www.aafa.org/
Materials available in Spanish
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
(800) 328-8476; (301) 657-0881
E-mail: info@autism-society.org
Web: www.autism-society.org
Materials available in Spanish
Beach Center on Disability
The University of Kansas
Haworth Hall, Room 3136
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
(785) 864-7600 (V/TTY)
E-mail: beach@ku.edu
Web: www.beachcenter.org
Best Buddies International, Inc.
100 S.E. Second Street, Suite 1990
Miami, FL 33131
(800) 892-8339; (305) 374-2233
E-mail: info@bestbuddies.org
Web: www.bestbuddies.org
Blind Children’s Center
4120 Marathon Street
Los Angeles, CA 90029-0159
(323) 664-2153; (800) 222-3566
E-mail: info@blindchildrenscenter.org
Web: www.blindchildrenscenter.org
Materials available in Spanish; Spanish speaker on staff
Brain Injury Association of America
8201 Greensboro Dr., Suite 611
McLean, VA 22102
(703) 761-0750; (800) 444-6443
E-mail: FamilyHelpline@biausa.org
Web: www.biausa.org
Materials available in Spanish; Spanish speaker on staff
CADRE (Consortium for Appropriate Dispute Resolution in Special Education)
Direction Service, Inc.
P.O. Box 51360
Eugene, OR 97405-0906
(541) 686-5060; (800) 695-0285 (NICHCY)
E-mail: cadre@directionservice.org
Web: www.directionservice.org/cadre
Materials available in Spanish; Spanish speaker on staff
Center for Effective Collaboration and Practice (CECP)
(Improving Services for Children and Youth with Emotional and Behavioral Problems)
1000 Thomas Jefferson St., N.W., Suite 400
Washington, DC 20007
(888) 457-1551; (202) 944-5300; (877) 334-3499 (TTY)
E-mail: center@air.org
Web: http://cecp.air.org
Center for Universal Design
North Carolina State University, College of Design
Campus Box 8613
Raleigh, NC 27695-8613
(800) 647-6777; (919) 515-3082 (V/TTY)
E-mail: cud@ncsu.edu
Web: www.design.ncsu.edu/cud
Child and Adolescent Bipolar Foundation
1187 Wilmette Ave., PMB #331
Wilmette, IL 60091
E-mail: cabf@bpkids.org
Web: www.bpkids.org
Materials available in Spanish; Spanish speaker on staff
Childhood Apraxia of Speech Association of North America (CASANA)
123 Eisele Road
Cheswick, PA 15024
(412) 767-6589
E-mail: helpdesk@apraxia-kids.org
Web: www.apraxia-kids.org
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 201
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (To request information packet)
Web: www.chadd.org
Materials available in Spanish; Spanish speaker on staff
Children’s Craniofacial Association
13140 Coit Road, Suite 307
Dallas, TX 75240
(800) 535-3643; (214) 570-9099
E-mail: contactCCA@ccakids.com
Web: www.ccakids.com
Children’s Liver Alliance (Web site only)
Web: http://www.liverkids.org.au
Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS)
P.O. Box 220398
Charlotte, NC 28222-0398
(800) 442-3437; (704) 365-2343
E-mail: cfids@cfids.org
Web: www.cfids.org
Closing the Gap, Inc.
(for information on computer technology in special education and rehabilitation)
P.O. Box 68
526 Main Street
Henderson, MN 56044
(507) 248-3294
Web: www.closingthegap.com
Consortium for Appropriate Dispute Resolution in Special Education
(see CADRE)
Council for Exceptional Children (CEC)
1110 N. Glebe Road, Suite 300
Arlington, VA 22201-5704
(888) 232-7733; (866) 915-5000 (TTY)
(703) 620-3660
E-mail: cec@cec.sped.org
Web: www.cec.sped.org/
Craniofacial Foundation of America
975 East Third Street
Chattanooga, TN 37403
(800) 418-3223; (423) 778-9192
E-mail: farmertm@erlanger.org
Web: www.erlanger.org/craniofacial/found1.html
Materials available in Spanish; Spanish speaker on staff
Crohn’s & Colitis Foundation of America
386 Park Avenue South, 17th Foor
New York, NY 10016
(800) 932-2423; (212) 685-3440
E-mail: info@ccfa.org
Web: www.ccfa.org
Materials available online only in Spanish; Spanish speaker on staff
Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) 344-4823; (301) 951-4422
E-mail: info@cff.org
Web: www.cff.org
Materials available in Spanish; Spanish speaker on staff
Depression and Bipolar Support Alliance
730 N. Franklin Street, Suite 501
Chicago, IL 60610
(800) 326-3632; (312) 642-0049
E-mail: questions@dbsalliance.org
Web: www.dbsalliance.org
Spanish speaker on staff
Disability Statistics Rehabilitation, Research and Training Center
3333 California Street, Room 340
University of California at San Francisco
San Francisco, CA 94118
(415) 502-5210 (Voice); (415) 502-5216 (TTY)
E-mail: distats@itsa.ucsf.edu
Web: www.dsc.ucsf.edu
Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
(301) 217-0960 (Voice); (301) 217-0963 (TTY)
E-mail: Information@dsusa.org
Web: www.dsusa.org
Easter Seals–National Office
230 West Monroe Street, Suite 1800
Chicago, IL 60606
(800) 221-6827; (312) 726-6200 (Voice)
(312) 726-4258 (TTY)
E-Mail: info@easter-seals.org
Web: www.easter-seals.org
Materials available in Spanish; Spanish speaker on staff
Epilepsy Foundation-National Office
4351 Garden City Drive, 5th Floor
Landover, MD 20785-4941
(800) 332-1000; (301) 459-3700
E-mail via the Web site.
Web: www.epilepsyfoundation.org
Materials available in Spanish; Spanish speaker on staff
FACES: The National Craniofacial Association
P.O. Box 11082
Chattanooga, TN 37401
(800) 332-2372; (423) 266-1632
E-mail: faces@faces-cranio.org
Web: www.faces-cranio.org
Families and Advocates Partnership for Education (FAPE)
Project is out of operation, but its Web site still provides information on IDEA for parents.
Web: www.fape.org
Materials available in Spanish
Family Center for Technology and Disabilities
Academy for Educational Development (AED)
1825 Connecticut Avenue, NW, 7th Floor
Washington, DC 20009-5721
(202) 884-8068
E-mail: fctd@aed.org
Web: www.fctd.info
Family Empowerment Network:
Support for Families Affected by FAS/E
772 S. Mills Street
Madison, WI 53715
(800) 462-5254; (608) 262-6590
E-mail: fen@fammed.wisc.edu
Web: www.fammed.wisc.edu/fen
Family Resource Center on Disabilities
20 East Jackson Boulevard, Room 900
Chicago, IL 60604
(800) 952-4199 (Voice/TTY; toll-free in IL only)
(312) 939-3513 (Voice); (312) 939-3519 (TTY)
Web: www.frcd.org/
Materials available in Spanish; Spanish speaker on staff
Family Village
(a global community of disability-related resources)
Waisman Center
University of Wisconsin-Madison
1500 Highland Avenue
Madison, WI 53705-2280
Web: www.familyvillage.wisc.edu/
Family Voices (a national coalition speaking for children with special health care needs)
3411 Candelaria NE, Suite M
Albuquerque, NM 87107
(888) 835-5669; (505) 872-4774
E-mail: kidshealth@familyvoices.org
Web: www.familyvoices.org
Materials available in Spanish
Federation of Families for Children’s Mental Health
1101 King Street, Suite 420
Alexandria, VA 22314
(703) 684-7710
E-mail: ffcmh@ffcmh.com
Web: www.ffcmh.org
Materials available in Spanish
Forward Face
(for children with craniofacial conditions)
317 East 34th Street, Suite 901A
New York, NY 10016
(212) 684-5860
E-mail: linda@forwardface.org
Web: www.forwardface.org
Foundation for Ichthyosis and Related Skin Types
650 N. Cannon Avenue, Suite 17
Lansdale, PA 19446
(800) 545-3286; (215) 631-1411
E-mail: info@scalyskin.org
Web: www.scalyskin.org
Materials available in Spanish
Genetic Alliance
4301 Connecticut, N.W., Suite 404
Washington, DC 20008
(800) 336-4363; (202) 966-5557
E-mail: info@geneticalliance.org
Web: www.geneticalliance.org
Head Start Bureau
Administration on Children, Youth and Families
U.S. Department of Health & Human Services
P.O. Box 1182
Washington, DC 20013
Web: www.acf.dhhs.gov/programs/hsb/
Human Growth Foundation
997 Glen Cove Avenue
Glen Head, NY 11545
(800) 451-6434
E-mail: hgf1@hgfound.org
Web: www.hgfound.org
Materials available in Spanish
Huntington’s Disease Society of America
158 West 29th Street, 7th Floor
New York, NY 10001-5300
(800) 345-HDSA; (212) 242-1968
E-mail: hdsainfo@hdsa.org
Web: www.hdsa.org
Materials available in Spanish
Hydrocephalus Association
870 Market Street #705
San Francisco, CA 94102
(415) 732-7040
E-mail: info@hydroassoc.org
Web: www.hydroassoc.org
Materials available in Spanish
IBM Accessability Center
11400 Burnet Road
Austin, TX 78758
(800) 426-4832 (Voice); (800) 426-4833 (TTY)
E-mail via the Web site.
Web: www-3.ibm.com/able/index.html
IDEA Partnerships
ASPIIRE & ILIAD Projects
Projects are out of operation, but the Web site still provides excellent information on IDEA.
Web: www.ideapractices.org
Immune Deficiency Foundation
40 W. Chesapeake Avenue, Suite 308
Towson, MD 21204
(800) 296-4433
E-mail: idf@primaryimmune.org
Web: www.primaryimmune.org
Materials available in Spanish
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (Voice); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org
Spanish speaker on staff
International Dyslexia Association
(formerly the Orton Dyslexia Society)
Chester Building #382
8600 LaSalle Road
Baltimore, MD 21286-2044
(800) 222-3123; (410) 296-0232
E-mail: info@interdys.org
Web: www.interdys.org
Materials available in Spanish
International Resource Center for Down Syndrome
Keith Building
1621 Euclid Avenue, Suite 514
Cleveland, OH 44115
(216) 621-5858; (800) 899-3039 (toll-free in OH only)
International Rett Syndrome Association
9121 Piscataway Rd., Suite 2B
Clinton, MD 20735-2561
(800) 818-7388; (301) 856-3334
E-mail: irsa@rettsyndrome.org
Web: www.rettsyndrome.org
Materials available in Spanish
Internet Mental Health (Web site only)
Web: www.mentalhealth.com
Job Accommodation Network (JAN)
West Virginia University
P.O. Box 6080
Morgantown, WV 26506-6080
(800) 526-7234 (Voice/TTY)
(800) 232-9675 (Voice/TTY, information on the ADA)
E-mail: jan@jan.wvu.edu
Web: www.jan.wvu.edu
Materials available in Spanish; Spanish speaker on staff
Kristin Brooks Hope Center
210 North 23rd St., Suite 100
Purcelleville, VA 20132
(540) 338-5756
E-mail: info@hopeline.com
Web: www.livewithdepression.org
LDOnline (Web site on learning disabilities)
Web: www.ldonline.org
Spanish site: www.ldonline.org/ccldinfo/spanish_index.html
Learning Disabilities Association of America (LDA)
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
E-mail: info@ldaamerica.org
Web: www.ldaamerica.org
Let’s Face It USA
(for information and support on facial differences)
P.O. Box 29972
Bellingham, WA 98228-1972
(360) 676-7325
E-mail: letsfaceit@faceit.org
Web: www.faceit.org
Leukemia & Lymphoma Society (formerly Leukemia Society of America)
1311 Mamaroneck Ave.
White Plains, NY 10605
(800) 955-4572; (914) 949-5213
E-mail: infocenter@leukemia-lymphoma.org
Web: www.leukemia-lymphoma.org
Materials available in Spanish; Spanish speaker on staff
Little People of America-National Headquarters
P.O. Box 65030
Lubbock, TX 79464
(888) LPA-2001
E-mail: LPADataBase@juno.com
Web: www.lpaonline.org
Spanish speaker on staff
Lupus Foundation of America
2000 L Street NW, Suite 710
Washington, DC 20036
(800) 558-0121; (800) 558-0231 (español)
(202) 349-1155
E-mail: lupusinfo@lupus.org
Web: www.lupus.org
Materials available in Spanish; Spanish speaker on staff
MAGIC Foundation (Major Aspects of Growth Disorders in Children)
6645 W. North Avenue
Oak Park, IL 60302
(708) 383-0808
E-mail: mary@magicfoundation.org
Web: www.magicfoundation.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 428-7100; (888) 663-4637
E-mail: askus@marchofdimes.com
Web: www.marchofdimes.com
Spanish site: www.nacersano.org
Materials available in Spanish; Spanish speaker on staff
Mental Help Net (Web site only)
Web: http://mentalhelp.net
MUMS, National Parent-to-Parent Network
150 Custer Ct., Green Bay, WI 54301-1243
(920) 336-5333; (877) 336-5333 (Parents only)
E-mail: mums@netnet.net
Web: www.netnet.net/mums/
Muscular Dystrophy Association (MDA)
3300 East Sunrise Drive
Tucson, AZ 85718
(800) 572-1717; (520) 529-2000
E-mail: mda@mdausa.org
Web: www.mdausa.org
Web site in Spanish: www.mdaenespanol.org
Materials available in Spanish; Spanish speaker on staff
National Alliance for the Mentally Ill (NAMI)
Colonial Place Three, 2107 Wilson Blvd, Suite 300
Arlington, VA 22201-3042
(800) 950-6264; (703) 524-7600
(703) 516-7991 (TTY)
E-mail: info@nami.org
Web: www.nami.org
Materials available in Spanish
National Association for the Dually Diagnosed (NADD)
(mental illness and mental retardation)
132 Fair Street
Kingston, NY 12401
(800) 331-5362; (845) 331-4336
E-mail: info@thenadd.org
Web: www.thenadd.org
National Association of the Deaf
814 Thayer Avenue, Suite 250
Silver Spring, MD 20910
(301) 587-1788; (301) 587-1789 (TTY)
E-mail: nadinfo@nad.org
Web: www.nad.org
National Association of Hospital Hospitality Houses
P.O. Box 18087
Asheville, NC 28814-0087
(800) 542-9730; (828) 253-1188
E-mail: helpinghomes@nahhh.org
Web: www.nahhh.org
National Association of Private Special Education Centers (NAPSEC)
1522 K Street N.W., Suite 1032
Washington, DC 20005
(202) 408-3338
E-mail: napsec@aol.com
Web: www.napsec.com
National Association of Protection and Advocacy
Systems (NAPAS)
900 Second Street N.E., Suite 211
Washington, DC 20002
(202) 408-9514 (Voice); (202) 408-9521 (TTY)
E-mail: info@napas.org
Web: www.napas.org/
National Ataxia Foundation
2600 Fernbrook Lane, Suite 119
Minneapolis, MN 55447
(763) 553-0020
E-mail: naf@ataxia.org
Web: www.ataxia.org
Materials available in Spanish
National Attention Deficit Disorder Association
P.O. Box 543
Pottstown, PA 19464
(484) 945-2101
E-mail: mail@add.org
Web: www.add.org
National Brain Tumor Foundation
414 13th Street, Suite 700
Oakland, CA 94612
(800) 934-2873; (510) 839-9777
E-mail: nbtf@braintumor.org
Web: www.braintumor.org
Materials available in Spanish; Spanish speaker on staff
National Center for Learning Disabilities (NCLD)
381 Park Avenue South, Suite 1401
New York, NY 10016
(212) 545-7510; 1(888) 575-7373
Web: www.ld.org
Web: www.getreadytoread.org
National Center for PTSD (Post-Traumatic Stress Disorder)
VA Medical Center (116D)
215 North Main Street, White River Junction, VT 05009
(802) 296-6300
E-mail: ncptsd@ncptsd.org
Web: www.ncptsd.org
National Center on Physical Activity and Disability (NCPAD)
1640 W. Roosevelt Road
Chicago, IL 60608-6904
(800) 900-8086 (V/TTY)
E-mail: ncpad@uic.edu
Web: www.ncpad.org
Materials available in Spanish; Spanish speaker on staff
National Chronic Fatigue Syndrome and Fibromyalgia Association (NCFSFA)
P.O. Box 18426
Kansas City, MO 64133
(816) 313-2000
E-mail: information@ncfsfa.org
Web: www.ncfsfa.org
National Council on Independent Living
1916 Wilson Boulevard, Suite 209
Arlington, VA 22201
(703) 525-3406; (703) 525-4153 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org
Spanish speaker on staff
National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(800) 232-6372; (770) 604-9500
E-mail: info@ndsccenter.org
Web: www.ndsccenter.org
Parent packet available in Spanish
National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012-2317
(800) 221-4602; (212) 460-9330
E-mail: info@ndss.org
Web: ndss.org
Materials available in Spanish; Spanish speaker on staff
National Eating Disorders Association
(formerly Eating Disorders Awareness and Prevention)
603 Stewart Street, Suite 803
Seattle, WA 98101
(800) 931-2237; (206) 382-3587
E-mail: info@NationalEatingDisorders.org
Web: www.nationaleatingdisorders.org
Materials available in Spanish
National Federation for the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314
E-mail: nfb@nfb.org
Web: www.nfb.org
Materials available in Spanish; Spanish speaker on staff
National Fragile X Foundation
P.O. Box 190488
San Francisco, CA 94119-0488
(800) 688-8765; (925) 938-9315
E-mail: NATLFX@FragileX.org
Web: www.fragilex.org
Materials available in Spanish
National Gaucher Foundation
5410 Edson Lane, Suite 260
Rockville, MD 20852-3130
(800) 428-2437; (301) 816-1515
E-mail: ngf@gaucherdisease.org
Web: www.gaucherdisease.org
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
(800) 622-9010; (212) 889-2210
E-Mail: info@kidney.org
Web: www.kidney.org
Materials available in Spanish
National Library Service for the Blind & Physically Handicapped
The Library of Congress
1291 Taylor Street N.W.
Washington, DC 20011
(800) 424-8567; (202) 707-5100 (Voice); (202) 707-0744 (TTY)
E-mail: nls@loc.gov
Web: www.loc.gov/nls
Materials available in Spanish; Spanish speaker on staff
National Limb Loss Information Center
Amputee Coalition of America
900 East Hill Avenue, Suite 285
Knoxville, TN 37915-2568
(888) 267-5669; (865) 524-8772
E-mail: nllicinfo@amputee-coalition.org
Web: www.amputee-coalition.org/nllic_about.html
Materials available in Spanish
National Lymphedema Network
1611 Telegraph Avenue, Suite 1111
Oakland, CA 94612
(800) 541-3259; (510) 208-3200
E-mail: nln@lymphnet.org
Web: www.lymphnet.org
National Mental Health Association
2001 N. Beauregard, 12th Floor
Alexandria, VA 22311
(800) 969-6642; (703) 684-7722
(800) 433-5959 (TTY)
E-mail via the Web site.
Web: www.nmha.org
Materials available in Spanish; Spanish speaker on staff
National Mental Health Information Center
(formerly the Knowledge Exchange Network)
P.O. Box 42557
Washington, DC 20015
(800) 789-2647; (866) 889-2647 (TTY)
E-mail: info@mentalhealth.org
Web: www.mentalhealth.org
Materials available in Spanish; Spanish speaker on staff
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
(800) 344-4867
E-mail via the Web site.
Web: www.nationalmssociety.org
Materials available in Spanish; Spanish speaker on staff
National Neurofibromatosis Foundation
95 Pine Street; 16th Floor
New York, NY 10005
(800) 323-7938; (212) 344-6633
E-mail: nnff@nf.org
Web: www.nf.org
Materials available in Spanish; Spanish speaker on staff
National Organization for Albinism and Hypopigmentation (NOAH)
P.O. Box 959
East Hampstead, NH 03826-0959
(800) 473-2310; (603) 887-2310
E-mail: webmaster@albinism.org
Web: www.albinism.org
Materials available in Spanish
National Organization on Disability (NOD)
910 16th Street N.W., Suite 600
Washington, DC 20006
(202) 293-5960 (Voice); (202) 293-5968 (TTY)
E-mail: ability@nod.org
Web: www.nod.org
Spanish speaker on staff
National Organization on Fetal Alcohol Syndrome (NOFAS)
900 17th ST NW, Suite 910
Washington, DC 20006
(800) 666-6327; (202) 785-4585
E-mail: information@nofas.org
Web: www.nofas.org
Materials available in Spanish; Spanish speaker on staff
National Patient Air Transport Hotline
%Mercy Medical Airlift, 4620 Haygood Road, Suite 1
Virginia Beach, VA 23445
(800) 296-1217
E-Mail: mercymedical@erols.com
Web: www.patienttravel.org
National Resource Center for Family Centered Practice
University of Iowa
100 Oakdale Hall
Iowa City, IA 52242-5000
(319) 335-4965
Web: www.nrcfp.org
Materials available in Spanish; Spanish speaker on staff
National Resource Center for Paraprofessionals in Education and Related Services
6526 Old Main Hill, Utah State University
Logan, UT 84322-6526
(435) 797-7272
E-mail: info@nrcpara.org
Web: www.nrcpara.org
National Resource Center on Supported Living and Choice
Syracuse University, Center on Human Policy
805 S. Crouse Avenue
Syracuse, NY 13244-2280
(800) 894-0826; (315) 443-3851; (315) 443-4355 (TTY)
E-mail: thechp@sued.syr.edu
Web: www.soeweb.syr.edu/thechp/nrc.html
National Reye’s Syndrome Foundation
P.O. Box 829
Bryan, OH 43506
(800) 233-7393; (419) 636-2679
E-mail: nrsf@reyessyndrome.org
Web: www.reyessyndrome.org
Materials available in Spanish
National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
(800) 673-6922; (781) 341-6333
E-mail: NSF@scoliosis.org
Web: www.scoliosis.org
Materials available in Spanish
National Sleep Foundation
1522 K Street, N.W., Suite 500
Washington, DC 20005
(202) 347-3471
E-mail: nsf@sleepfoundation.org
Web: www.sleepfoundation.org
Materials available in Spanish
National Spinal Cord Injury Association
6701 Democracy Blvd., Suite 300-9
Bethesda, MD 20817
(800) 962-9629; (301) 588-6959
E-mail: info@spinalcord.org
Web: www.spinalcord.org
Spanish speaker on staff
National Stuttering Association
119 W. 40th Street, 14th Floor
New York, NY 10018
(800) 937-8888
E-mail: info@westutter.org
Web: www.westutter.org
National Tay-Sachs and Allied Diseases Association
2001 Beacon Street, Suite 204
Brighton, MA 02135
(800) 906-8723
E-mail: info@ntsad.org
Web: www.ntsad.org
Materials available in Spanish
Neurofibromatosis, Inc.
9320 Annapolis Road, Suite 300
Lanham, MD 20706-3123
(800) 942-6825; (301) 918-4600
E-mail: info@nfinc.org
Web: www.nfinc.org
Materials available in Spanish
NLD (Nonverbal Learning Disorder) on the Web (Web site only)
Web: www.NLDontheweb.org
Nonverbal Learning Disorders Association
2446 Albany Avenue
West Hartford, CT 06117
(800) 570-0217
E-mail: NLDA@nlda.org
Web: www.nlda.org
Obsessive Compulsive Foundation, Inc.
676 State Street
New Haven, CT 06511
(203) 401-2070
E-mail: info@ocfoundation.org
Web: www.ocfoundation.org
Materials available in Spanish; Spanish speaker on staff
Osteogenesis Imperfecta Foundation
804 Diamond Ave., Suite 210
Gaithersburg, MD 20878
(800) 981-2663; (301) 947-0083
E-mail: bonelink@oif.org
Web: www.oif.org
Materials available in Spanish
Parents Helping Parents:
The Parent-Directed Family Resource Center
for Children with Special Needs
3041 Olcott St.
Santa Clara, CA 95054
(408) 727-5775
E-mail: info@php.com
Web: www.php.com
Materials available in Spanish; Spanish speaker on staff
Parents of Galactosemic Children
885 Del Sol Street
Sparks, NV 89436
(775) 626-0885
E-mail: mesmeadow@aol.com
Web: www.galactosemia.org
Parent to Parent of the United States (Web site only)
Web: www.p2pusa.org/index.html
Pathways Awareness Foundation
150 N. Michigan Avenue, Suite 2100
Chicago, IL 60601
(800) 955-2445
E-mail: friends@pathwaysawareness.org
Web: www.pathwaysawareness.org
Brochure and video available in Spanish
Prader-Willi Syndrome Association
5700 Midnight Pass Road, Suite 6
Sarasota, FL 34242
(800) 926-4797; (941) 312-0400
E-mail: national@pwsausa.org
Web: www.pwsausa.org
Materials available in Spanish
Recording for the Blind and Dyslexic
The Anne T. Macdonald Center
20 Roszel Road
Princeton, NJ 08540
(800) 221-4792; (866) 732-3585; (609) 452-0606
E-mail: custserv@rfbd.org
Web: www.rfbd.org
Registry of Interpreters for the Deaf
333 Commerce Street
Alexandria, VA 22314
(703) 838-0030; (703) 838-0459 (TTY)
E-mail: info@rid.org
Web: www.rid.org
RESNA (Rehabilitation Engineering and Assistive Technology Society of North America)
1700 N. Moore Street, Suite 1540
Arlington, VA 22209-1903
(703) 524-6686 (Voice); (703) 524-6639 (TTY)
E-mail: info@resna.org
Web: www.resna.org
Schwab Learning
1650 S. Amphlett Blvd., Suite 300
San Mateo, CA 94402
(800) 230-0988; (650) 655-2410
E-mail: webmaster@schwablearning.org
Web: www.schwablearning.org
Portion of Web site in Spanish
Scleroderma Foundation
12 Kent Way, Suite 101
Byfield, MA 01922
(800) 722-4673; (978) 463-5843
E-mail: sfinfo@scleroderma.org
Web: www.scleroderma.org
Materials available in Spanish; Can refer to Spanish speaker
Self Help for Hard of Hearing People, Inc. (SHHH)
7910 Woodmont Ave., Suite 1200
Bethesda, MD 20814
(301) 657-2248; (301) 657-2249 (TTY)
E-mail: information@hearingloss.org
Web: www.hearingloss.org
Special Needs Advocate for Parents (SNAP)
11835 W. Olympic Blvd, Suite 65
Los Angeles, CA 90069
(888) 310-9889
E-mail: info@snapinfo.org
Web: www.snapinfo.org
Special Olympics International
1325 G Street N.W., Suite 500
Washington, D.C. 20005
(202) 628-3630
E-mail: info@specialolympics.org
Web: www.specialolympics.org/
Materials available in Spanish and French
Spanish and French speaker on staff
Spina Bifida Association of America
4590 MacArthur Boulevard, N.W., Suite 250
Washington, D.C. 20007-4226
(800) 621-3141; (202) 944-3285
E-mail: sbaa@sbaa.org
Web: www.sbaa.org
Materials available in Spanish; Spanish speaker on staff
Stuttering Foundation
3100 Walnut Grove Road #603
P.O. Box 11749
Memphis, TN 38111
(800) 992-9392
Email: stutter@stutteringhelp.org
Web: www.stutteringhelp.org
Materials available in Spanish
TASH (formerly the Association for Persons with Severe Handicaps)
29 W. Susquehanna Ave., Suite 210
Baltimore, MD 21204
(410) 828-8274 (Voice); (410) 828-1306 (TTY)
E-mail: info@tash.org
Web: www.tash.org
Technical Assistance Alliance for Parent Centers
(the Alliance)
PACER Center
8161 Normandale Blvd.
Minneapolis, MN 55437-1044
(888) 248-0822; (952) 838-9000
(952) 838-0190 (TTY)
E-mail: alliance@taalliance.org
Web: www.taalliance.org
Materials available in Spanish; Spanish speaker on staff
Tourette Syndrome Association
42-40 Bell Boulevard
Bayside, NY 11361
(718) 224-2999
E-mail: ts@tsa-usa.org
Web: www.tsa-usa.org
Materials available in Spanish
Trace R&D Center
1550 Engineering Drive, 2107 Engineering Hall
Madison, WI 53706
(608) 262-6966; (608) 263-5408 (TTY)
E-mail: info@trace.wisc.edu
Web: www.trace.wisc.edu/
Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
(800) 225-6872; (301) 562-9890
E-mail: info@tsalliance.org
Web: www.tsalliance.org
United Cerebral Palsy Association, Inc.
1660 L Street, N.W., Suite 700
Washington, DC 20036
(202) 776-0406; (800) 872-5827;
(202) 973-7197 (TTY)
E-Mail: national@ucp.org
Web: www.ucp.org
Materials available in Spanish
United Leukodystrophy Foundation
2304 Highland Drive
Sycamore, IL 60178
(800) 728-5483
E-mail: ulf@tbcnet.com
Web: www.ulf.org
Materials available in Spanish
U.S. Society of Augmentative and Alternative Communication
P.O. Box 21418
Sarasota, FL 34276
(941) 312-0992
E-mail: USSAAC@comcast.net
Web: www.ussaac.org
Vestibular Disorders Association
P.O. Box 4467
Portland OR 97208-4467
(800) 837-8428; (503) 229-7705
E-mail: veda@vestibular.org
Web: www.vestibular.org
Williams Syndrome Association, Inc.
P.O. Box 297
Clawson, MI 48017-0297
(800) 806-1871; (248) 244-2229
E-mail: info@williams-syndrome.org
Web: www.williams-syndrome.org
Materials available in Spanish
World Association of Persons with disAbilities
4503 Sunnyview Drive, Suite 1121
P.O. Box 14111
Oklahoma City, OK 73135
(405) 672-4440
E-mail: thehub@wapd.org
Web: www.wapd.org
Zero to Three
(National Center for Infants, Toddlers, and Families)
2000 M Street NW, Suite 200
Washington, DC 20036
(800) 899-4301 (for publications); (202) 638-1144
Web: www.zerotothree.org
Materials available in Spanish
Clearinghouses
Cancer Information Service
National Cancer Institute, Room 3036A
6116 Executive Blvd., MSC8322,
Bethesda, MD 20892-8322
(800) 422-6237 (Voice); (800) 332-8615 (TTY)
Web: http://cancer.gov
Materials available in Spanish; Spanish speaker on staff
Center on Positive Behavioral Interventions and Supports
1761 Alder Street
1235 University of Oregon
Eugene, OR 97403-5262
(541) 346-2505
E-mail: pbis@oregon.uoregon.edu
Web: www.pbis.org
Materials available in Spanish
Clearinghouse on Disability Information
Office of Special Education and Rehabilitative Services
Communication & Media Services
Room 3132, Switzer Building
330 C Street S.W.
Washington, DC 20202-2524
(202) 205-8241 (Voice/TTY)
DB-LINK
National Information Clearinghouse on Children
Who Are Deaf-Blind
345 N. Monmouth Avenue
Monmouth, OR 97361
(800) 438-9376 (Voice); (800) 854-7013 (TTY)
E-mail: dblink@tr.wou.edu
Web: www.dblink.org
Materials available in Spanish
ERIC Clearinghouse on Disabilities and Gifted Education
Council for Exceptional Children (CEC)
(Project is no longer in operation, but a substantial Web site of disability-related materials is still available.)
Web: http://ericec.org
ERIC System
Educational Resources Information Center
(800) 538-3742
Web: http://eric.ed.gov
Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
Center for Substance Abuse Prevention
Substance Abuse and Mental Health Services Administration
E-mail via the Web Form at: http://www.fascenter.samhsa.gov/contact/contactus.cfm
Web: http://www.fascenter.samhsa.gov/index.cfm
Genetic and Rare Diseases Information Center
P.O. Box 8126
Gaithersburg, MD 20898-8126
(888) 205-2311 (Voice); (888) 205-3223 (TTY)
E-mail: gardinfo@nig.gov
Web: http://rarediseases.info.nih.gov/index.html
HEATH Resource Center (National Clearinghouse)
on Postsecondary Education for Individuals with
Disabilities)
The George Washington University
2121 K Street N.W., Suite 220
Washington, DC 20037
(800) 544-3284 (V/TTY); (202) 973-0904
E-mail: askheath@heath.gwu.edu
Web: www.heath.gwu.edu
HRSA Information Center
(for publications and resources on health care services for low-income, uninsured individuals and those with special health care needs)
Health Resources and Services Administration
U.S. Department of Health and Human Services
Parklawn Building,
5600 Fishers Lane
Rockville, MD 20857
(888) 275-4772
E-mail: ask@hrsa.gov
Web: www.ask.hrsa.gov
Publications available in Spanish; Spanish speaker on staff
Laurent Clerc National Deaf Education Center
and Clearinghouse
KDES PAS-6
800 Florida Avenue, NE
Washington, DC 20002-3695
(202) 651-5051 (V/TTY)
E-mail: Clearinghouse.InfoToGo@gallaudet.edu
Web: http://clerccenter.gallaudet.edu/InfoToGo
National Center on Secondary Education and Transition
University of Minnesota
6 Pattee Hall, 150 Pillsbury Drive S.E.
Minneapolis, MN 55455
(612) 624-2097
E-mail: ncset@umn.edu
Web: www.ncset.org
National Clearinghouse for Alcohol and Drug Information (NCADI)
P.O. Box 2345
Rockville, MD 20847-2345
(800) 729-6686; (877) 767-8432 (español)
(301) 468-2600; (800) 487-4899 (TTY)
E-mail: info@health.org
Web: www.health.org
Materials available in Spanish; Spanish speaker on staff
National Diabetes Information Clearinghouse
One Information Way
Bethesda, MD 20892
(800) 860-8747; (301) 654-3327
E-mail via the Web Form at: http://diabetes.niddk.nih.gov/about/contact.htm
Web: http://diabetes.niddk.nih.gov/about/index.htm
Materials available in Spanish
National Digestive Diseases Information Clearinghouse
Two Information Way
Bethesda, MD 20892
(800) 891-5389; (301) 654-3810
E-mail via the Web Form at: http://digestive.niddk.nih.gov/about/contact.htm
Web: http://digestive.niddk.nih.gov/about/index.htm
Materials available in Spanish
National Health Information Center
P.O. Box 1133
Washington, D.C. 20013-1133
(800) 336-4797; (301) 565-4167
E-mail: info@nhic.org
Web: www.health.gov/nhic/
Materials available in Spanish; Spanish speaker on staff
National Heart, Lung, and Blood Institute Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
(800) 575-9355; (301) 592-8573; (240) 629-3255 (TTY)
E-mail: NHLBIinfo@rover.nhlbi.nih.gov
Web: www.nhlbi.nih.gov
Spanish speaker on staff
National Institute of Arthritis and Musculoskeletal
and Skin Diseases
Information Clearinghouse
1 AMS Circle, Bethesda, MD 20892-3675
(877) 226-4267; (301) 495-4484 (Voice)
(301) 565-2966 (TTY)
E-mail: NIAMSinfo@mail.nih.gov
Web: www.niams.nih.gov
Materials available in Spanish; Spanish speaker on staff
National Institute of Neurological Disorders & Stroke (NINDS)
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424; (301) 496-5751; (301) 468-5981(TTY)
E-mail via the Web Form at: http://www.ninds.nih.gov/contact_us.htm
Web: www.ninds.nih.gov
Materials available in Spanish; Spanish speaker on staff
National Institute on Deafness and Other Communication Disorders Clearinghouse
31 Center Drive, MCS 2320
Bethesda, MD 20892-3456
(800) 241-1044 (V); (800) 241-1055 (TTY)
E-mail: nidcdinfo@nidcd.nih.gov
Web: www.nidcd.nih.gov
Materials available in Spanish; Spanish speaker on staff
National Institute on Mental Health (NIMH)
Public Inquiries
6001 Executive Boulevard, Room 8184
MSC 9663
Bethesda, MD 20892-9663
(866) 615-6464; (301) 443-4513 (V); 301) 443-8431 (TTY)
E-mail: nimhinfo@nih.gov
Web: www.nimh.nih.gov/publicat/index.cfm
Materials available in Spanish; Spanish speaker on staff
National Kidney and Urologic Diseases Information Clearinghouse
Three Information Way
Bethesda, MD 20892
(800) 891-5390; (301) 654-3327
E-mail via the Web Form at: http://kidney.niddk.nih.gov/about/contact.htm Web: http://kidney.niddk.nih.gov/about/index.htm
Materials available in Spanish
National Lead Information Center
422 South Clinton Avenue
Rochester, NY 14620
(800) 424-5323
E-mail via the Web site.
Web: www.epa.gov/lead/nlic.htm
Materials available in Spanish; Spanish speaker on staff
National Organization for Rare Disorders (NORD)
P.O. Box 1968
Danbury, CT 06813-1968
(800) 999-6673; (203) 744-0100 (Voice)
(203) 797-9590 (TTY)
E-mail: orphan@rarediseases.org
Web: www.rarediseases.org
National Rehabilitation Information Center (NARIC)
4200 Forbes Boulevard, Suite 202
Lanham, MD 20706
(800) 346-2742; (301) 459-5900; (301) 459-5984 (TTY)
E-mail: naricinfo@heitechservices.com
Web: www.naric.com
Research and Training Center on Family Support and
Children’s Mental Health
Portland State University
P.O. Box 751
Portland, OR 97207-0751
(503) 725-4040 (Voice); (503) 725-4165 (TTY)
E-mail: gordon1@pdx.edu
Web: www.rtc.pdx.edu/
Materials available in Spanish; Spanish speaker on staff
Research and Training Center on Independent Living
University of Kansas
4089 Dole Building, 1000 Sunnyside Ave.
Lawrence, KS 66045-7555
(785) 864-4095 (Voice); (785) 864-0706 (TTY)
E-mail: rtcil@ku.edu
Web: www.rtcil.org
Materials available in Spanish
