National Toll Free Numbers for National Organizations

The following list is provided by The National Dissemination Center for Children and Youth with Disabilities and is a selected list of toll-free numbers for national organizations concerned with disability and children’s issues. Inclusion on this list does not imply endorsement by NASET, NICHCY, or the Office of Special Education Programs.

AIDS

AIDSinfo (formerly AIDS Clinical Trials
Information Services)
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)

CDC National Prevention Information Network
1(800) 458-5231 (V; English/Spanish)
1(800) 243-7012 (TTY)

CDC National STD and AIDS Hotline
1(800) 342-2437 (V); 1(800) 227-8922
1(800) 344-7432 (V; Spanish)
1(800) 243-7889 (TTY)

Hemophilia and AIDS/HIV Network for
Dissemination of Information
1(800) 424-2634 (V)

HIV/AIDS Treatment Information Service
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)

National Pediatric & Family HIV Resource Center
1(800) 362-0071 (V; English/Spanish)

Alcohol and Drug Abuse

American Council for Drug Education (ACDE)
1(800) 488-3784

Families Anonymous
1(800) 736-9805

National Clearinghouse for Alcohol and Drug Information
1(800) 729-6686 (V); 1(877) 767-8432 (Spanish)
1(800) 487-4889 (TTY)

National Council on Alcoholism & Drug Dependence
1(800) 622-2255

Americans with Disabilities Act (ADA)

ADA InfoLine—U.S. Department of Justice
1(800) 514-0301 (V, English/Spanish)
1(800) 514-0383 (TTY)

ADA National Access for Public Schools Project
1(800) 893-1225 (V/TTY)

Center for Universal Design
1(800) 647-6777 (V)

Disability & Business Technical Assistance Centers
1(800) 949-4232 (V/TTY)

Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)

Job Accommodation Network (Jan)
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)

U.S. Access Board
1(800) 872-2253 (V)
1(800) 993-2822 (TTY)

U.S. Department of Housing and Urban
Development—HUD User
1(800) 245-2691 (V)
1(800) 927-7589 (TTY)

Assistive Technology / Devices

Abledata
1(800) 227-0216

AbleNet
1(800) 322-0956 (V)

Alliance for Technology Access
1(800) 455-7970

Apple Computers Disability Connection
1(800) 692-7753

IBM Accessibility Center (formerly the Independence Series Information Center)
1(800) 426-4832 (V); 1(800) 426-4833 (TTY)

National Lekotek Center’s Toy Resource Helpline
(800) 366-7529; 1(800) 573-4446 (TTY)

TechKnowledge
1(800) 726-9119 (V/TTY)

Blindness / Visual Impairments

American Council of the Blind
1(800) 424-8666 (V; English/Spanish)

American Foundation for the Blind
1(800) 232-5463 (V)

American Printing House for the Blind
1(800) 223-1839

Blind Children’s Center
1(800) 222-3566 (V)

Library Reproduction Service (LRS)
1(800) 255-5002

Lighthouse National Center for Vision and Child Development
1(800) 829-0500 (V)
1(212) 821-9713 (TTY)

National Association for Parents of Children with Visual Impairments
1(800) 562-6265

National Library for the Blind and Physically Handicapped
1(800) 424-8567 (V)

Prevent Blindness America
1(800) 331-2020 (V)

Recording for the Blind and Dyslexic
1(800) 221-4792 (V)

The Foundation Fighting Blindness
1(888) 394-3937 (V)
1(800) 683-5551 (TTY)

Burns

Burn Survivors Throughout the World
1(800) 503-8058

Phoenix Society for Burn Survivors
1(800) 888-2876 (V)

Shriners Hospitals for Children
1(800) 237-5055

Cancer

American Cancer Society
1(800) 227-2345

Cancer Information and Counseling Line
1(800) 525-3777 (V)

Cancer Information Service
1(800) 422-6237 (V); 1(800) 332-8615 (TTY)

Candlelighters Childhood Cancer Foundation
1(800) 366-2223 (V)

National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)

National Cancer Information Service
1(800) 422-6237 (V; English/Spanish)
1(800) 332-8615 (TTY)

Support for People with Oral and Head and Neck Cancer
1(800) 377-0928

Child Abuse

National Child Abuse Hotline
1(800) 422-4453

Clearinghouse on Child Abuse and Neglect/Family Violence Information
1(800) 394-3366 (V)

National Center for Missing and Exploited Children
1(800) 843-5678 (V)
1(800) 826-7653 (TTY)

Prevent Child Abuse America
1(800) 244-5373

Child Care

Child Care Aware 1(800) 424-2246

National Child Care Information Center
1(800) 616-2242 (V; English/Spanish)
1(800) 516-2242 (TTY)

National Resource Center for Health and Safety in Child Care
1(800) 598-5437

Communication Disorders

Communication Aid Manufacturers’ Association
1(800) 441-2262

National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)

National Stuttering Association
1(800) 937-8888

Stuttering Foundation of America
1(800) 992-9392

Craniofacial Syndromes

Children’s Craniofacial Association
1(800) 535-3643 (V)

Craniofacial Foundation of America
1(800) 418-3223

Faces—National Craniofacial Association
1(800) 332-2373 (V)

Foundation for Nager and Miller Syndromes
1(800) 507-3667 (V)

Crisis Intervention

Nineline Crisis Hotline
1(800) 999-9999

National Hopeline Network1(800) SUICIDE (784-2433)

Deafness / Hearing Impairments

American Society for Deaf Children
1(800) 942-2732 (V/TTY)

Better Hearing Institute
1(800) 327-9355 (V/TTY)

Hear Now
1(800) 648-4327 (V/TTY)

Hearing Aid Helpline
1(800) 521-5247 (V/TTY)

John Tracy Clinic
1(800) 522-4582 (V/TTY; English/Spanish)
1(213) 748-5481 (V; in 213 area)
1(213) 747-2924 (TTY; in 213 area)

National Cued Speech Association
1(800) 459-3529

National Information Clearinghouse on Children Who are Deaf-Blind (DB-LINK)
1(800) 438-9376 (V); 1(800) 854-7013 (TTY)

National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)

Postsecondary Education Programs Network Resource Center (PEPNet)
1(888) 684-4695 (V/TTY)

Disability Awareness

Kids on the Block
1(800) 368-5437 (V)

Education

American Association for Vocational Instructional Materials
1(800) 228-4689 (V)

Association for Career & Technical Education
1(800) 826-9972 (V/TTY)

Association for Childhood Education International
1(800) 423-3563 (V)

Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)
1(877) 275-3227 (V/TTY)

ERIC System (Educational Resources Information Center)
1(800) 538-3742

Federal Student Aid Information Center
1(800) 433-3243
1(800) 730-8913 (TTY)

HEATH Resource Center
(for information on post-secondary education for individuals with disabilities)
1(800) 544-3284 (V/TTY)

National Alliance of Black School Educators
1(800) 221-2654

National Association for the Education of Young Children (NAEYC)
1(800) 424-2460

National Clearinghouse for English Language
Acquisition & Language Instruction Educational Programs (NCELA)
1(800) 321-6223

National Clearinghouse for Comprehensive School Reform (NCCSR)
1(877) 766-4277

National Information Center for Educational Media
1(800) 926-8328 (V/TTY)

National Institute for Literacy (NIFL)
1(800) 228-8813
1(800) 552-9097 (TTY)

National Library of Education (NLE)
1(800) 424-1616

National Middle School Association
1(800) 528-6672

No Child Left Behind (NCLB)
1(888) 814-6252 (V)
1(800) 437-0833 (TTY)

Employment

Education, Career, and Community Program
1(800) 547-6339

Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)

Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)

National Center on Workforce and Disability/Adult
1(888) 886-9898 (V/TTY)

National Collaborative on Workforce and Disability/Youth
1(877) 871-4748 (V/TTY)

Financial Counseling

National Foundation for Consumer Credit
1(800) 388-2227 (V)
1(800) 682-9832 (Spanish)

Hospice

Children’s Hospice International
1(800) 242-4453 (V/TTY)

Hospice Education Institute (formerly Hospicelink)
1(800) 331-1620 (V)

Information Centers

Abledata (for information on assistive technology)
1(800) 227-0216 (V/TTY)

Access Eric
1(800) 538-3742 (V)

HRSA Information Center (formerly National Maternal and Child Health Clearinghouse)
1(888) 275-4772

National Epilepsy Library
1(800) 332-4050

National Health Information Center
1(800) 336-4797

National Dissemination Center for Children with Disabilities (NICHCY)
1(800) 695-0285 (V/TTY; English/Spanish)

National Lead Information Center
1(800) 424-5323 (English/Spanish)

National Library of Medicine
1(888) 346-3656

Office of Minority Health Resource Center
1(800) 444-6472 (V; English/Spanish)

Zero to Three/National Center for Infants, Toddlers, and Families
1(800) 899-4301

Literacy

National Literacy Hotline
1(800) 228-8813
1(800) 552-9097 (TTY)

ProLiteracy Worldwide (formerly Laubach Literacy International and Literacy Volunteers of America)
1(888) 528-2224

Reading is Fundamental
1(877) 743-7323

Medical / Health Disorders

American Academy of Allergy, Asthma, and Immunology
1(800) 822-2762

American Association of Kidney Patients
1(800) 749-2257 (V)

American Brain Tumor Association
1(800) 886-2282 (V)

American Cancer Society
1(800) 227-2345 (V; English/Spanish)

American Diabetes Association
1(800) 342-2383 (V; English/Spanish)

American Heart Association
1(800) 242-8721 (V; English/Spanish)

American Kidney Fund
1(800) 638-8299 (V)

American Liver Foundation
1(800) 465-4838 (V; English/Spanish)
1(888) 443-7872

American Lung Association
1(800) 586-4872 (V; English/Spanish)

American Stroke Association
1(888) 478-7653 (V)

Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (V)

Asthma and Allergy Foundation of America
1(800) 727-8462

Celiac Sprue Association
1(877) CSA-4CSA (272-4272)

Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS)
1(800) 442-3437 (V)

Crohn and Colitis Foundation of America
1(800) 932-2423

Cystinosis Foundation
1(800) 392-8458

Epilepsy Foundation
1(800) 332-1000

Family Voices: A National Coalition Speaking for Children with Special Health Care Needs
1(888) 835-5669 (V)

Foundation for Ichthyosis and Related Skin Types
1(800) 545-3286

Immune Deficiency Foundation
1(800) 296-4433

International Foundation for Functional Gastrointestinal Disorders
1(888) 964-2001

Kennedy Krieger Institute
1(888) 554-2080

Leukemia and Lymphoma Society (formerly the Leukemia Society of America)
1(800) 955-4572 (V)

Lifeline Pilots
1(800) 822-7972

Lupus Foundation of America
1(800) 558-0121 (V)
1(800) 558-0231 (V; Spanish)

Lyme Disease Foundation
1(800) 644-9737

Malignant Hyperthermia Association
1(800) 866-Lyme (5963)

National Association of Hospital Hospitality
Houses (Nahhh)
1(800) 542-9730

National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)

National Diabetes Information Clearinghouse
1(800) 860-8747

National Digestive Diseases Information Center
1(800) 891-5389

National Eating Disorders Association (formerly Eating Disorders Awareness and Prevention)
1(800) 931-2237

National Epilepsy Library
1(800) 332-4050

National Foundation for Transplants
1(800) 489-3863

National Health Information Center
1(800) 336-4797

National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (V; English/Spanish)

National Institute of Arthritis and Musculoskeletal and Skin Diseases Clearinghouse
1(877) 226-4267 (V)

National Jewish Medical and Research Center  1(800) 222-5864

National Kidney Foundation
1(800) 622-9010

National Lymphedema Network
1(800) 541-3259

National Patient Travel Helpline
1(800) 296-1217

Oxalosis & Hyperoxaluria Foundation
1(800) OHF-8699 (643-8699)

Shriners Hospital for Children
1(800) 237-5055 (V)

Sickle Cell Disease Association of America
1(800) 421-8453 (V)

United Ostomy Association
1(800) 826-0826 (V)

Vestibular Disorders Association
1(800) 837-8428

Williams Syndrome Association 1(800) 806-1871

Mental Health

Anxiety Disorders Information,
National Institute of Mental Health
1(888) 826-9438 (English/Spanish)

Mood and Anxiety Disorders Program,
National Institute of Mental Health
1(866) 627-6464

National Alliance for the Mentally Ill
1(800) 950-6264 (V, English/Spanish)

National Association for the Dually Diagnosed
1(800) 331-5362

National Foundation for Depressive Illness
1(800) 239-1265

National Hopeline Network
1(800) Suicide (784-2433) (English/Spanish)

National Institute of Mental Health (NIMH) Hopeline

1(800) 784-2433

National Institute of Mental Health (NIMH) Information Line
1(866) 615-6464

National Mental Health Association
1(800) 969-6642 (V); 1(800) 433-5959 (TTY)

National Mental Health Consumer Self-Help Clearinghouse
1(800) 553-4539 (English/Spanish)

National Mental Health Information Center (formerly Knowledge Exchange Network)
1(800) 789-2647

Minority Issues

Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)
1(877) 275-3227 (V/TTY)

Gates Millennium Scholars
1(877) 690-4677

Hispanic Scholarship Fund
1(877) 473-4636

Nacer Sano (March of Dimes Birth Defects Foundation)
1(888) 663-4637 (English/Spanish)

National Alliance of Black School Educators
1(800) 221-2654

National Clearinghouse for English Langugage Acquisition (NCELA)
1(800) 321-6223

National Organization for People of Color Against Suicide
1(866) 899-5317

Office of Minority Health Resource Center
1(800) 444-6472 (V; English/Spanish)

Proyecto Visión Hotline
1(866) Empleo-1 (367-5361)

Physical Disabilities

Christopher and Dana Reeve Paralysis Resource Center
1(800) 539-7309

Courage Center
1(888) 8INTAKE (846-8253)

Craniofacial Foundation of America
1(800) 418-3223

Easter Seals—National Office
1(800) 221-6827 (V); 1(312) 726-4258 (TTY)

Human Growth Foundation
1(800) 451-6434 (V)

Muscular Dystrophy Association
1(800) 572-1717

National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1(877) 226-4267 (V)

National Library Services for the Blind and Physically Handicapped
1(800) 424-8567 (V)

National Limb Loss Information Center
1(888) 267-5669 (English/Spanish)

National Scoliosis Foundation
1(800) 673-6922 (V)

National Spasmodic Torticollis Association
1(800) 487-8385

National Spinal Cord Injury Hotline
1(800) 962-9629 (V)

Paralyzed Veterans of America
1(800) 424-8200

Pathways Awareness Foundation
1(800) 955-2445 (V)

Rare Syndromes

Genetic Alliance
1(800) 336-4363 (V)

Genetic & Rare Diseases Information Center
1(888) 205-2311
1(888) 205-3223 (TTY)

National Organization for Rare Disorders (Nord)
1(800) 999-6673 (V/TTY)

Recreation

Adventures in Movement for the Handicapped
1(800) 332-8210 (V)

Best Buddies
1(800) 892-8339 (V)

Girl Scouts of the USA
1(800) 478-7248

National Center on Physical Activity and Disability
1(800) 900-8086 (V/TTY)

National Lekotek Center’s Toy Resource Helpline
1(800) 366-PLAY (V); 1(800) 573-4446 (TTY)

North American Riding for the Handicapped, Inc.
1(800) 369-7433 (V)

Rehabilitation

Abledata
1(800) 227-0216 (V/TTY)

ADED: Association for Driver Rehabilitation Specialists
1(800) 290-2344

National Clearinghouse of Rehabilitation Training Materials
1(800) 223-5219 (V)

National Rehabilitation Information Center (NARIC)
1(800) 346-2742

Respiratory Disorders

American Lung Association
1(800) 586-4872

National Jewish Medical & Research Center
(formerly Lungline)
1(800) 222-5864 (V)

National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)

Respite Care

Arch National Resource Center,
National Respite Locator Service
1(800) 773-5433 (V)

Rural

Rural Institute on Disabilities
1(800) 732-0323

Specific Disabilities

American Association on Mental Retardation
1(800) 424-3688 (outside D.C. area)
(202) 387-1968 (in D.C.)

American Behcet’s Disease Association
1(800) 7-BEHCETS (723-42387)

Amyotrophic Lateral Sclerosis Association (ALSA)
1(800) 782-4747 (for Patients)

Angelman Syndrome Foundation
1(800) 432-6435

Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (V)

Arthritis Foundation
1(800) 283-7800

Autism Society of America
1(800) 3-Autism (328-8476)

Beckwith Wiedemann Support Network
1(800) 837-2976

Brain Injury Association
1(800) 444-6443 (V)

Center for the Study & Treatment of Usher Syndrome
1(800) 835-1468 (V/TTY)

Children and Adults with Attention-Deficit/ Hyperactivity Disorder (CHADD)
1(800) 233-4050
(301) 306-7070 (in Washington, DC metro area)

Cleft Palate Foundation
1(800) 242-5338

Cooley’s Anemia Foundation
1(800) 522-7222 (V)

Cornelia de Lange Syndrome Foundation
1(800) 223-8355 (V); (860) 676-8166 (V; in CT)

Crohn’s and Colitis Foundation of America
1(800) 932-2423

Cystic Fibrosis Foundation
1(800) 344-4823 (V)

Epilepsy Foundation—National Office
1(800) 332-1000 (V)

Family Empowerment Network: Support for Families Affected by FAS/E
1(800) 462-5254

Foundation for Ichthyosis & Related Skin Types
1(800) 545-3286

Huntington’s Disease Society of America
1(800) 345-4372

International Dyslexia Association (formerly the Orton Dyslexia Society)
1(800) 222-3123

International Rett Syndrome Association
1(800) 818-7388

Little People of America
1(888) 572-2001

Lyme Disease Foundation
1(800) 886-5963

Malignant Hyperthermia Association of the U.S.
1(800) 986-4287

National Association for the Dually Diagnosed (NADD)
1(800) 331-5362

National Center for Learning Disabilities
1(888) 575-7373

National Down Syndrome Congress
1(800) 232-6372 (V)

National Down Syndrome Society
1(800) 221-4602 (V; English/Spanish)

National Eating Disorders Association (formerly Eating Disorders Awareness and Prevention)
1(800) 931-2237

National Fragile X Foundation
1(800) 688-8765 (V)

National Gaucher Foundation
1(800) 428-2437

National Lymphedema Network
1(800) 541-3259

National Marfan Foundation
1(800) 8-Marfan (862-7326)

National Multiple Sclerosis Society
1(800) 344-4867 (V; English/Spanish)

National Neurofibromatosis Foundation
1(800) 323-7938

National Niemann-Pick Disease Foundation
1(877) 287-3672

National Organization for Albinism and Hypopigmentation
1(800) 473-2310 (V)

National Organization on Fetal Alcohol Syndrome
1(800) 666-6327

National Reye’s Syndrome Foundation
1(800) 233-7393 (V)

National Scoliosis Foundation
1(800) 673-6922 (V)

National Stuttering Association
1(800) 937-8888

National Tay-Sachs & Allied Diseases Association, Inc.
1(800) 906-8723 (V)

Neurofibromatosis, Inc.
1(800) 942-6825

Nonverbal Learning Disorders Association
1(800) 570-0217

Osteogenesis Imperfecta Foundation
1(800) 981-2663 (V)

Prader-Willi Syndrome Association
1(800) 926-4797 (V)

Scleroderma Foundation
1(800) 722-4673

Spina Bifida Association of America
1(800) 621-3141 (V; English/Spanish)

Sturge-Weber Foundation
1(800) 627-5482

Stuttering Foundation of America
1(800) 992-9392 (V)

Support Organization for Trisomy 17, 13, and Related Disorders
1(800) 716-7638

Sudden Infant Death Syndrome Alliance
1(800) 221-7437 (V)

Tuberous Sclerosis Alliance (formerly National Tuberous Sclerosis Association)
1(800) 225-6872 (V)

United Cerebral Palsy Associations
1(800) 872-5827 (V)

United Leukodystrophy Foundation
1(800) 728-5483 (V)

Williams Syndrome Association
1(800) 806-1871

Wilson’s Disease Association
1(800) 399-0266

Suicide Prevention

American Foundation for Suicide Prevention
1(888) 333-2377

National Hopeline Network
1(800) SUICIDE (784-2433)

National Organization for People of Color Against Suicide
1(866) 899-5317

Nineline Crisis Hotline
1(800) 999-9999

Supplemental Security Income (SSI)

Social Security Administration
1(800) 772-1213 (V; English/Spanish)
1(800) 325-0778 (TTY)

Trauma

American Trauma Society
1(800) 556-7890 (V)
1(800) 735-2258 (TTY)

Brain Injury Association
1(800) 444-6443 (V)

National Spinal Cord Injury Association
1(800) 962-9629 (V)

Wishes for Children

Believe in Tomorrow National Children’s Foundation (formerly the Grant-a-Wish Foundation)
1(800) 933-5470

Sunshine Foundation
1(800) 767-1976

The above information is from NICHCY
P.O. Box 1492
Washington, DC 20013
(800) 695-0285 · v/tty
(202) 884-8441 · fax
Email: nichcy@aed.org
Web: www.nichcy.org

Become a Member Today

Join thousands of special education professionals and gain access to resources, professional development, and a supportive community dedicated to excellence in special education.

Become a Member Today
Chat with NASET