The following list is provided by The National Dissemination Center for Children and Youth with Disabilities and is a selected list of toll-free numbers for national organizations concerned with disability and children’s issues. Inclusion on this list does not imply endorsement by NASET, NICHCY, or the Office of Special Education Programs.
AIDS
AIDSinfo (formerly AIDS Clinical Trials
Information Services)
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)
CDC National Prevention Information Network
1(800) 458-5231 (V; English/Spanish)
1(800) 243-7012 (TTY)
CDC National STD and AIDS Hotline
1(800) 342-2437 (V); 1(800) 227-8922
1(800) 344-7432 (V; Spanish)
1(800) 243-7889 (TTY)
Hemophilia and AIDS/HIV Network for
Dissemination of Information
1(800) 424-2634 (V)
HIV/AIDS Treatment Information Service
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)
National Pediatric & Family HIV Resource Center
1(800) 362-0071 (V; English/Spanish)
Alcohol and Drug Abuse
American Council for Drug Education (ACDE)
1(800) 488-3784
Families Anonymous
1(800) 736-9805
National Clearinghouse for Alcohol and Drug Information
1(800) 729-6686 (V); 1(877) 767-8432 (Spanish)
1(800) 487-4889 (TTY)
National Council on Alcoholism & Drug Dependence
1(800) 622-2255
Americans with Disabilities Act (ADA)
ADA InfoLine—U.S. Department of Justice
1(800) 514-0301 (V, English/Spanish)
1(800) 514-0383 (TTY)
ADA National Access for Public Schools Project
1(800) 893-1225 (V/TTY)
Center for Universal Design
1(800) 647-6777 (V)
Disability & Business Technical Assistance Centers
1(800) 949-4232 (V/TTY)
Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
Job Accommodation Network (Jan)
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
U.S. Access Board
1(800) 872-2253 (V)
1(800) 993-2822 (TTY)
U.S. Department of Housing and Urban
Development—HUD User
1(800) 245-2691 (V)
1(800) 927-7589 (TTY)
Assistive Technology / Devices
Abledata
1(800) 227-0216
AbleNet
1(800) 322-0956 (V)
Alliance for Technology Access
1(800) 455-7970
Apple Computers Disability Connection
1(800) 692-7753
IBM Accessibility Center (formerly the Independence Series Information Center)
1(800) 426-4832 (V); 1(800) 426-4833 (TTY)
National Lekotek Center’s Toy Resource Helpline
(800) 366-7529; 1(800) 573-4446 (TTY)
TechKnowledge
1(800) 726-9119 (V/TTY)
Blindness / Visual Impairments
American Council of the Blind
1(800) 424-8666 (V; English/Spanish)
American Foundation for the Blind
1(800) 232-5463 (V)
American Printing House for the Blind
1(800) 223-1839
Blind Children’s Center
1(800) 222-3566 (V)
Library Reproduction Service (LRS)
1(800) 255-5002
Lighthouse National Center for Vision and Child Development
1(800) 829-0500 (V)
1(212) 821-9713 (TTY)
National Association for Parents of Children with Visual Impairments
1(800) 562-6265
National Library for the Blind and Physically Handicapped
1(800) 424-8567 (V)
Prevent Blindness America
1(800) 331-2020 (V)
Recording for the Blind and Dyslexic
1(800) 221-4792 (V)
The Foundation Fighting Blindness
1(888) 394-3937 (V)
1(800) 683-5551 (TTY)
Burns
Burn Survivors Throughout the World
1(800) 503-8058
Phoenix Society for Burn Survivors
1(800) 888-2876 (V)
Shriners Hospitals for Children
1(800) 237-5055
Cancer
American Cancer Society
1(800) 227-2345
Cancer Information and Counseling Line
1(800) 525-3777 (V)
Cancer Information Service
1(800) 422-6237 (V); 1(800) 332-8615 (TTY)
Candlelighters Childhood Cancer Foundation
1(800) 366-2223 (V)
National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)
National Cancer Information Service
1(800) 422-6237 (V; English/Spanish)
1(800) 332-8615 (TTY)
Support for People with Oral and Head and Neck Cancer
1(800) 377-0928
Child Abuse
National Child Abuse Hotline
1(800) 422-4453
Clearinghouse on Child Abuse and Neglect/Family Violence Information
1(800) 394-3366 (V)
National Center for Missing and Exploited Children
1(800) 843-5678 (V)
1(800) 826-7653 (TTY)
Prevent Child Abuse America
1(800) 244-5373
Child Care
Child Care Aware 1(800) 424-2246
National Child Care Information Center
1(800) 616-2242 (V; English/Spanish)
1(800) 516-2242 (TTY)
National Resource Center for Health and Safety in Child Care
1(800) 598-5437
Communication Disorders
Communication Aid Manufacturers’ Association
1(800) 441-2262
National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)
National Stuttering Association
1(800) 937-8888
Stuttering Foundation of America
1(800) 992-9392
Craniofacial Syndromes
Children’s Craniofacial Association
1(800) 535-3643 (V)
Craniofacial Foundation of America
1(800) 418-3223
Faces—National Craniofacial Association
1(800) 332-2373 (V)
Foundation for Nager and Miller Syndromes
1(800) 507-3667 (V)
Crisis Intervention
Nineline Crisis Hotline
1(800) 999-9999
National Hopeline Network1(800) SUICIDE (784-2433)
Deafness / Hearing Impairments
American Society for Deaf Children
1(800) 942-2732 (V/TTY)
Better Hearing Institute
1(800) 327-9355 (V/TTY)
Hear Now
1(800) 648-4327 (V/TTY)
Hearing Aid Helpline
1(800) 521-5247 (V/TTY)
John Tracy Clinic
1(800) 522-4582 (V/TTY; English/Spanish)
1(213) 748-5481 (V; in 213 area)
1(213) 747-2924 (TTY; in 213 area)
National Cued Speech Association
1(800) 459-3529
National Information Clearinghouse on Children Who are Deaf-Blind (DB-LINK)
1(800) 438-9376 (V); 1(800) 854-7013 (TTY)
National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)
Postsecondary Education Programs Network Resource Center (PEPNet)
1(888) 684-4695 (V/TTY)
Disability Awareness
Kids on the Block
1(800) 368-5437 (V)
Education
American Association for Vocational Instructional Materials
1(800) 228-4689 (V)
Association for Career & Technical Education
1(800) 826-9972 (V/TTY)
Association for Childhood Education International
1(800) 423-3563 (V)
Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)
1(877) 275-3227 (V/TTY)
ERIC System (Educational Resources Information Center)
1(800) 538-3742
Federal Student Aid Information Center
1(800) 433-3243
1(800) 730-8913 (TTY)
HEATH Resource Center
(for information on post-secondary education for individuals with disabilities)
1(800) 544-3284 (V/TTY)
National Alliance of Black School Educators
1(800) 221-2654
National Association for the Education of Young Children (NAEYC)
1(800) 424-2460
National Clearinghouse for English Language
Acquisition & Language Instruction Educational Programs (NCELA)
1(800) 321-6223
National Clearinghouse for Comprehensive School Reform (NCCSR)
1(877) 766-4277
National Information Center for Educational Media
1(800) 926-8328 (V/TTY)
National Institute for Literacy (NIFL)
1(800) 228-8813
1(800) 552-9097 (TTY)
National Library of Education (NLE)
1(800) 424-1616
National Middle School Association
1(800) 528-6672
No Child Left Behind (NCLB)
1(888) 814-6252 (V)
1(800) 437-0833 (TTY)
Employment
Education, Career, and Community Program
1(800) 547-6339
Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
National Center on Workforce and Disability/Adult
1(888) 886-9898 (V/TTY)
National Collaborative on Workforce and Disability/Youth
1(877) 871-4748 (V/TTY)
Financial Counseling
National Foundation for Consumer Credit
1(800) 388-2227 (V)
1(800) 682-9832 (Spanish)
Hospice
Children’s Hospice International
1(800) 242-4453 (V/TTY)
Hospice Education Institute (formerly Hospicelink)
1(800) 331-1620 (V)
Information Centers
Abledata (for information on assistive technology)
1(800) 227-0216 (V/TTY)
Access Eric
1(800) 538-3742 (V)
HRSA Information Center (formerly National Maternal and Child Health Clearinghouse)
1(888) 275-4772
National Epilepsy Library
1(800) 332-4050
National Health Information Center
1(800) 336-4797
National Dissemination Center for Children with Disabilities (NICHCY)
1(800) 695-0285 (V/TTY; English/Spanish)
National Lead Information Center
1(800) 424-5323 (English/Spanish)
National Library of Medicine
1(888) 346-3656
Office of Minority Health Resource Center
1(800) 444-6472 (V; English/Spanish)
Zero to Three/National Center for Infants, Toddlers, and Families
1(800) 899-4301
Literacy
National Literacy Hotline
1(800) 228-8813
1(800) 552-9097 (TTY)
ProLiteracy Worldwide (formerly Laubach Literacy International and Literacy Volunteers of America)
1(888) 528-2224
Reading is Fundamental
1(877) 743-7323
Medical / Health Disorders
American Academy of Allergy, Asthma, and Immunology
1(800) 822-2762
American Association of Kidney Patients
1(800) 749-2257 (V)
American Brain Tumor Association
1(800) 886-2282 (V)
American Cancer Society
1(800) 227-2345 (V; English/Spanish)
American Diabetes Association
1(800) 342-2383 (V; English/Spanish)
American Heart Association
1(800) 242-8721 (V; English/Spanish)
American Kidney Fund
1(800) 638-8299 (V)
American Liver Foundation
1(800) 465-4838 (V; English/Spanish)
1(888) 443-7872
American Lung Association
1(800) 586-4872 (V; English/Spanish)
American Stroke Association
1(888) 478-7653 (V)
Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (V)
Asthma and Allergy Foundation of America
1(800) 727-8462
Celiac Sprue Association
1(877) CSA-4CSA (272-4272)
Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS)
1(800) 442-3437 (V)
Crohn and Colitis Foundation of America
1(800) 932-2423
Cystinosis Foundation
1(800) 392-8458
Epilepsy Foundation
1(800) 332-1000
Family Voices: A National Coalition Speaking for Children with Special Health Care Needs
1(888) 835-5669 (V)
Foundation for Ichthyosis and Related Skin Types
1(800) 545-3286
Immune Deficiency Foundation
1(800) 296-4433
International Foundation for Functional Gastrointestinal Disorders
1(888) 964-2001
Kennedy Krieger Institute
1(888) 554-2080
Leukemia and Lymphoma Society (formerly the Leukemia Society of America)
1(800) 955-4572 (V)
Lifeline Pilots
1(800) 822-7972
Lupus Foundation of America
1(800) 558-0121 (V)
1(800) 558-0231 (V; Spanish)
Lyme Disease Foundation
1(800) 644-9737
Malignant Hyperthermia Association
1(800) 866-Lyme (5963)
National Association of Hospital Hospitality
Houses (Nahhh)
1(800) 542-9730
National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)
National Diabetes Information Clearinghouse
1(800) 860-8747
National Digestive Diseases Information Center
1(800) 891-5389
National Eating Disorders Association (formerly Eating Disorders Awareness and Prevention)
1(800) 931-2237
National Epilepsy Library
1(800) 332-4050
National Foundation for Transplants
1(800) 489-3863
National Health Information Center
1(800) 336-4797
National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (V; English/Spanish)
National Institute of Arthritis and Musculoskeletal and Skin Diseases Clearinghouse
1(877) 226-4267 (V)
National Jewish Medical and Research Center 1(800) 222-5864
National Kidney Foundation
1(800) 622-9010
National Lymphedema Network
1(800) 541-3259
National Patient Travel Helpline
1(800) 296-1217
Oxalosis & Hyperoxaluria Foundation
1(800) OHF-8699 (643-8699)
Shriners Hospital for Children
1(800) 237-5055 (V)
Sickle Cell Disease Association of America
1(800) 421-8453 (V)
United Ostomy Association
1(800) 826-0826 (V)
Vestibular Disorders Association
1(800) 837-8428
Williams Syndrome Association 1(800) 806-1871
Mental Health
Anxiety Disorders Information,
National Institute of Mental Health
1(888) 826-9438 (English/Spanish)
Mood and Anxiety Disorders Program,
National Institute of Mental Health
1(866) 627-6464
National Alliance for the Mentally Ill
1(800) 950-6264 (V, English/Spanish)
National Association for the Dually Diagnosed
1(800) 331-5362
National Foundation for Depressive Illness
1(800) 239-1265
National Hopeline Network
1(800) Suicide (784-2433) (English/Spanish)
National Institute of Mental Health (NIMH) Hopeline
1(800) 784-2433
National Institute of Mental Health (NIMH) Information Line
1(866) 615-6464
National Mental Health Association
1(800) 969-6642 (V); 1(800) 433-5959 (TTY)
National Mental Health Consumer Self-Help Clearinghouse
1(800) 553-4539 (English/Spanish)
National Mental Health Information Center (formerly Knowledge Exchange Network)
1(800) 789-2647
Minority Issues
Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)
1(877) 275-3227 (V/TTY)
Gates Millennium Scholars
1(877) 690-4677
Hispanic Scholarship Fund
1(877) 473-4636
Nacer Sano (March of Dimes Birth Defects Foundation)
1(888) 663-4637 (English/Spanish)
National Alliance of Black School Educators
1(800) 221-2654
National Clearinghouse for English Langugage Acquisition (NCELA)
1(800) 321-6223
National Organization for People of Color Against Suicide
1(866) 899-5317
Office of Minority Health Resource Center
1(800) 444-6472 (V; English/Spanish)
Proyecto Visión Hotline
1(866) Empleo-1 (367-5361)
Physical Disabilities
Christopher and Dana Reeve Paralysis Resource Center
1(800) 539-7309
Courage Center
1(888) 8INTAKE (846-8253)
Craniofacial Foundation of America
1(800) 418-3223
Easter Seals—National Office
1(800) 221-6827 (V); 1(312) 726-4258 (TTY)
Human Growth Foundation
1(800) 451-6434 (V)
Muscular Dystrophy Association
1(800) 572-1717
National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1(877) 226-4267 (V)
National Library Services for the Blind and Physically Handicapped
1(800) 424-8567 (V)
National Limb Loss Information Center
1(888) 267-5669 (English/Spanish)
National Scoliosis Foundation
1(800) 673-6922 (V)
National Spasmodic Torticollis Association
1(800) 487-8385
National Spinal Cord Injury Hotline
1(800) 962-9629 (V)
Paralyzed Veterans of America
1(800) 424-8200
Pathways Awareness Foundation
1(800) 955-2445 (V)
Rare Syndromes
Genetic Alliance
1(800) 336-4363 (V)
Genetic & Rare Diseases Information Center
1(888) 205-2311
1(888) 205-3223 (TTY)
National Organization for Rare Disorders (Nord)
1(800) 999-6673 (V/TTY)
Recreation
Adventures in Movement for the Handicapped
1(800) 332-8210 (V)
Best Buddies
1(800) 892-8339 (V)
Girl Scouts of the USA
1(800) 478-7248
National Center on Physical Activity and Disability
1(800) 900-8086 (V/TTY)
National Lekotek Center’s Toy Resource Helpline
1(800) 366-PLAY (V); 1(800) 573-4446 (TTY)
North American Riding for the Handicapped, Inc.
1(800) 369-7433 (V)
Rehabilitation
Abledata
1(800) 227-0216 (V/TTY)
ADED: Association for Driver Rehabilitation Specialists
1(800) 290-2344
National Clearinghouse of Rehabilitation Training Materials
1(800) 223-5219 (V)
National Rehabilitation Information Center (NARIC)
1(800) 346-2742
Respiratory Disorders
American Lung Association
1(800) 586-4872
National Jewish Medical & Research Center
(formerly Lungline)
1(800) 222-5864 (V)
National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)
Respite Care
Arch National Resource Center,
National Respite Locator Service
1(800) 773-5433 (V)
Rural
Rural Institute on Disabilities
1(800) 732-0323
Specific Disabilities
American Association on Mental Retardation
1(800) 424-3688 (outside D.C. area)
(202) 387-1968 (in D.C.)
American Behcet’s Disease Association
1(800) 7-BEHCETS (723-42387)
Amyotrophic Lateral Sclerosis Association (ALSA)
1(800) 782-4747 (for Patients)
Angelman Syndrome Foundation
1(800) 432-6435
Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (V)
Arthritis Foundation
1(800) 283-7800
Autism Society of America
1(800) 3-Autism (328-8476)
Beckwith Wiedemann Support Network
1(800) 837-2976
Brain Injury Association
1(800) 444-6443 (V)
Center for the Study & Treatment of Usher Syndrome
1(800) 835-1468 (V/TTY)
Children and Adults with Attention-Deficit/ Hyperactivity Disorder (CHADD)
1(800) 233-4050
(301) 306-7070 (in Washington, DC metro area)
Cleft Palate Foundation
1(800) 242-5338
Cooley’s Anemia Foundation
1(800) 522-7222 (V)
Cornelia de Lange Syndrome Foundation
1(800) 223-8355 (V); (860) 676-8166 (V; in CT)
Crohn’s and Colitis Foundation of America
1(800) 932-2423
Cystic Fibrosis Foundation
1(800) 344-4823 (V)
Epilepsy Foundation—National Office
1(800) 332-1000 (V)
Family Empowerment Network: Support for Families Affected by FAS/E
1(800) 462-5254
Foundation for Ichthyosis & Related Skin Types
1(800) 545-3286
Huntington’s Disease Society of America
1(800) 345-4372
International Dyslexia Association (formerly the Orton Dyslexia Society)
1(800) 222-3123
International Rett Syndrome Association
1(800) 818-7388
Little People of America
1(888) 572-2001
Lyme Disease Foundation
1(800) 886-5963
Malignant Hyperthermia Association of the U.S.
1(800) 986-4287
National Association for the Dually Diagnosed (NADD)
1(800) 331-5362
National Center for Learning Disabilities
1(888) 575-7373
National Down Syndrome Congress
1(800) 232-6372 (V)
National Down Syndrome Society
1(800) 221-4602 (V; English/Spanish)
National Eating Disorders Association (formerly Eating Disorders Awareness and Prevention)
1(800) 931-2237
National Fragile X Foundation
1(800) 688-8765 (V)
National Gaucher Foundation
1(800) 428-2437
National Lymphedema Network
1(800) 541-3259
National Marfan Foundation
1(800) 8-Marfan (862-7326)
National Multiple Sclerosis Society
1(800) 344-4867 (V; English/Spanish)
National Neurofibromatosis Foundation
1(800) 323-7938
National Niemann-Pick Disease Foundation
1(877) 287-3672
National Organization for Albinism and Hypopigmentation
1(800) 473-2310 (V)
National Organization on Fetal Alcohol Syndrome
1(800) 666-6327
National Reye’s Syndrome Foundation
1(800) 233-7393 (V)
National Scoliosis Foundation
1(800) 673-6922 (V)
National Stuttering Association
1(800) 937-8888
National Tay-Sachs & Allied Diseases Association, Inc.
1(800) 906-8723 (V)
Neurofibromatosis, Inc.
1(800) 942-6825
Nonverbal Learning Disorders Association
1(800) 570-0217
Osteogenesis Imperfecta Foundation
1(800) 981-2663 (V)
Prader-Willi Syndrome Association
1(800) 926-4797 (V)
Scleroderma Foundation
1(800) 722-4673
Spina Bifida Association of America
1(800) 621-3141 (V; English/Spanish)
Sturge-Weber Foundation
1(800) 627-5482
Stuttering Foundation of America
1(800) 992-9392 (V)
Support Organization for Trisomy 17, 13, and Related Disorders
1(800) 716-7638
Sudden Infant Death Syndrome Alliance
1(800) 221-7437 (V)
Tuberous Sclerosis Alliance (formerly National Tuberous Sclerosis Association)
1(800) 225-6872 (V)
United Cerebral Palsy Associations
1(800) 872-5827 (V)
United Leukodystrophy Foundation
1(800) 728-5483 (V)
Williams Syndrome Association
1(800) 806-1871
Wilson’s Disease Association
1(800) 399-0266
Suicide Prevention
American Foundation for Suicide Prevention
1(888) 333-2377
National Hopeline Network
1(800) SUICIDE (784-2433)
National Organization for People of Color Against Suicide
1(866) 899-5317
Nineline Crisis Hotline
1(800) 999-9999
Supplemental Security Income (SSI)
Social Security Administration
1(800) 772-1213 (V; English/Spanish)
1(800) 325-0778 (TTY)
Trauma
American Trauma Society
1(800) 556-7890 (V)
1(800) 735-2258 (TTY)
Brain Injury Association
1(800) 444-6443 (V)
National Spinal Cord Injury Association
1(800) 962-9629 (V)
Wishes for Children
Believe in Tomorrow National Children’s Foundation (formerly the Grant-a-Wish Foundation)
1(800) 933-5470
Sunshine Foundation
1(800) 767-1976
The above information is from NICHCY
P.O. Box 1492
Washington, DC 20013
(800) 695-0285 · v/tty
(202) 884-8441 · fax
Email: nichcy@aed.org
Web: www.nichcy.org
